Brian - Kidney Transplant

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  • 43 year old man
  • Was in car accident
  • Worked for petrocan at the time
  • Had transplant 19 months after accident
  • Had conventional dialysis, conventional self dialysis, then finally peritoneal dialysis before transplantation
  • Rejected the kidney
    • Felt like a sudden heavy flu
    • Felt very nautious
    • Very sudden onset
  • Cadaveric donation (not live)
  • Family was being tested for match
  • cadaveric donor came up before testing was complete
  • Put on OKT3 to try to save the kidney ("turn it around")
    • Stopped his heart, but didn't save the kidney
  • On dialysis pending second kidney
  • Brother finally gave him his second kidney
  • Second kidney was lost 7 months later
  • Brother's wife was worried about him donating his kidney
    • Always worry or complication about any surgery
    • Brother had two children at home
  • No rejection in the second kidney
  • Had an abscess, so was in hospital
  • Was getting liquid cyclosporin and demerol
  • Doing biopsy, and damaged kidney
  • Lost kidney
  • Feels that it was bad luck "What can you do about it?"
  • Doctor initially told him it was rejection
  • Didn't feel it was a problem that the doctors lied
  • Thinks it was more likely miscommunication
  • Dialysis is part of his routine now
  • 23 year old when his accident happened
  • Just finished university
  • Feels he had a good support system
  • Met his wife when he was sick
  • The day he finished training to do self-exchanges in peritoneal dialysis was the day he got the call for a transplant
  • Would take nocturnal dialysis over transplant at this stage
  • had lots of support
    • e.g., kidney foundation; social workers
    • Didn't like talking about things "like that" with social workers
    • "Couldn't imagine having to go through this by myself, especially at the start"
  • Worked for the kidney foundation to setup the peer-support chapter in London
  • Personally doesn't like dealing with social workers, but worked with them professionally
  • Nurses are a great support, especially because a lot of time is spent around them
  • Very healthy before accident
    • No allergies, no medications
  • No health problems that are not dialysis-related
  • Current side effects are: anemic, tired
  • "just don't feel good" when on conventional dialysis
  • Urea is high, so you want to drink
  • Night dialysis is more constant, and thus more gentle
  • Couldn't eat meat or protein
  • Left kidney foundation 4 years ago
  • unemployed currently
  • After accident, worked for petro can as a salesman, then lost the first transplant
  • Opened up a printing business, but had to close it up after second transplant
  • Not presently looking for work
  • Disability plans through government and kidney foundation
  • Enjoys golf, weight lifting
  • Can't consume alcohol (4 beers in a month)
  • Smokes <10 cigarettes a day
  • Kid is unaffected generally by the dialysis
    • Takes friends to see machine